It’s been a while since I updated y’all on what’s going on. There’s more than one reason for that.
One is that I got blindsided by the effects of radiation therapy even though I was told to expect them.
Two is that it’s difficult to tell whether what I’m experiencing is from the radiation and what is from the fibromyalgia.
Three, this has been more tiring than I expected. I guess I’m not twenty-three, or even forty-three, any more.
Interestingly, except for the some of the physical stuff, they’re an awful lot alike.
The first physical thing – and I won’t go into great detail – is the sloughing of tissue and the weeping and oozing. I expected “peeling skin,” like a sunburn, not what I got, though there is some of that, too. Sort of. But the good news is that once it started to heal (about a week ago) it was really rapid and there is no more of that. The skin is still not normal but it’s getting closer to it. it’s still peeling, too.
The second physical thing is the fatigue factor. I don’t know how radiating one relatively small part of the body can cause such a systemic response, but it’s pretty severe, even compared to fibromyalgia. Or maybe it’s a combination of the two and that’s why it’s so drastic. I mean, how many times can I fall asleep right after dinner and wake up only to go to bed?
Part of the fatigue factor might be due to the fact that I finished therapy only to go to a three day writers conference less than a week later, the Story Circle Network conference. I suppose the wisest thing to do would have been to wait until the next one but that’s two years, so…
And it was worth it. But not easy. Fatigue there was, sleep there was not, or at least not good sleep, more of a passing out.
I was inspired by all the great presentations and personal stories of so many talented women. I only hope I can hang on to that inspiration until the fatigue resolves. That may be sort of iffy, like my writing.
And memory issues. I can’t decide if I’m sliding rapidly down into Alzheimer’s or having yet another side effect of the radiation. Again, I was told to expect some of that but I was already having fibro fog now and again so what am I to think? I’ve always had a very good brain and now I feel like I’m losing it. Literally.
So here I am, still with the fibro, recovering well (I think) from the radiation, and now also taking the hormone therapy pills. I don’t know whether the heat intolerance I’m enduring is from the fibro or the pills. I was told to expect “hot flashes” but these are not flashes. Been there, done that.
This is pretty much a day long – and occasionally into the night – “flash” and I don’t tolerate heat well. I can only turn the air conditioning down so far before it drives SO to put his sweater on. That doesn’t go over too well either with him or with my checkbook. AC in Texas can run up a pretty good bill.
So that’s me at the moment. Achy, healing, hot, sweaty, uncomfortable and tired. I go see the doc the day after tomorrow and I’ll find out how she says I’m doing compared to what I feel I’m doing.
Such a crap shoot.